RT Organizes Fundraising To Support A Family Raising A Disabled Child

RT Organizes Fundraising To Support A Family Raising A Disabled Child
RT Organizes Fundraising To Support A Family Raising A Disabled Child

Video: RT Organizes Fundraising To Support A Family Raising A Disabled Child

Video: RT Organizes Fundraising To Support A Family Raising A Disabled Child
Video: Parenting Twins With Disabilities (My Perfect Family: Twins) 2023, June

A 44-year-old resident of Anapa, Svetlana Gotkina, together with her husband, a citizen of Kazakhstan, are raising a son with a disability, suffering from oncology. Several months ago, after complications caused by bone marrow transplantation, the boy was brought to Moscow for treatment. Now he lives with his mother in a hospital. Svetlana's husband rents an apartment nearby and visits them every day. However, due to the lack of Russian citizenship, he cannot officially find a job. I have to interrupt with odd jobs. As part of the project "We will continue to act" RT organizes fundraising to support the family.

In the summer of 2020, a 15-year-old resident of Anapa, Maxim Gotkin, was admitted to intensive care due to complications caused by a previous bone marrow transplant after cancer.

According to his mother, Svetlana Gotkina, doctors at the Children's Regional Clinical Hospital in Krasnodar believed that there was no chance of recovery.

“In a very serious condition, we flew to Moscow to the Rogachev clinic (NMITs DGOI named after Dmitry Rogachev. - RT),” Svetlana recalls. “We have been on treatment here for four months and are trying to solve this problem.”

Doctors diagnosed Maxim with acute myeloid leukemia in 2015. During the first eight months of treatment, the child underwent four blocks of chemotherapy.

The disease, according to the mother, went into remission, but two years later there was a relapse - myeloid leukemia was transformed into lymphoblastic.

According to Svetlana, Maxim needed a bone marrow transplant, and she became a donor for him. However, the boy soon developed immune complications that affected the gastrointestinal tract.

In November 2020, according to his mother, Maxim underwent bowel surgery, and last week he underwent another surgery to remove a colostomy.

Now the boy is under the constant supervision of doctors and lives with his mother in the clinic.

“There is a school at the clinic,” says Svetlana. - Maxim, like other patients, studies here. The son feels differently, but does not lose heart. Faced with such a disease, children grow up early. I do not hide anything from him, I explain everything in the course of treatment. We went through a lot with him, so we have a mutual understanding without a word."

Prior to his illness and disability, Maxim went to classes on a stunt scooter.

Now, due to aggressive drugs, he has problems with bones, so traumatic sports are contraindicated for him.

“He misses the scooter a lot, but he found himself another hobby - he got carried away with cooking. We bought him a slow cooker and a grill. When he comes back home, he will cook,”Svetlana smiles.

However, the boy's biggest dream, by his own admission, is to get a job in the summer.

“She says she wants to make money and furnish her room,” says the woman. - Periodically shows me some interior ideas. I promised him that if he had the strength, he would go to work. But now I try to direct him towards not physical, but mental stress. Maybe something related to IT, programming. He is very fond of this. He also plans to learn the Czech language and go to the Czech Republic to study."

Arrives for five minutes

Due to the coronavirus pandemic, all patients of the clinic. Dmitry Rogachev is constantly in the building: they are forbidden to go out, relatives are not allowed to see them either. For the fifth month Svetlana and Maxim have been living in a hospital ward.

Svetlana's husband, Alexander, rented an apartment near the clinic and visits them every day.

“He buys and brings us food, medicine, and necessary things from home,” says the boy's mother. - Maxim sometimes gives him instructions: go to the post office, buy a cable or cord, download the game to the computer. He arrives at the hospital in the evenings, we cross at the checkpoint for five minutes, and he goes home."

Two years ago, Svetlana divorced Maxim's father and married Alexander. He is a citizen of Kazakhstan, last year he received a temporary residence permit at the place of registration - in Anapa. The family does not have their own housing, they lived in a rented apartment.

“It made no sense for my husband to stay in a rented apartment, so he came to Moscow with us and we rented a house here,” explains Gotkina.

According to her, due to Maxim's health condition, the family will have to stay in Moscow for at least a year, since the boy needs constant monitoring at the clinic for now.

At the same time, in the spring, Alexander needs to apply for a residence permit (residence permit). He cannot submit an application in Moscow, since, according to the law, this is done at the place of registration - in his case, in Anapa.

As RT was explained in the press service of the Ministry of Internal Affairs of Russia, in accordance with paragraph 2 of Article 11 of Federal Law 115-FZ "On the Legal Status of Foreign Citizens in the Russian Federation", a foreign citizen temporarily residing in Russia is not entitled to voluntarily change his place of residence within the region, where he is allowed temporary residence.

"These provisions of the legislation do not apply to a foreign citizen temporarily residing in the Russian Federation, choosing his place of residence within the constituent entity of the Russian Federation, on the territory of which he is permitted temporary residence, or outside the specified constituent entity of the Russian Federation in connection with the relocation of this foreign citizen to a new place. residence of a citizen of the Russian Federation specified in subparagraph 4 of paragraph 3 of article 6 of Federal Law 115-FZ,”the department said.

Thus, in order for Alexander to be able to apply in Moscow, his wife needs to obtain a permanent residence permit in Moscow - and only after that her husband will have the right to transfer his documents from Anapa to the capital. Having no relatives or acquaintances in Moscow who are ready to register in her apartment, it will be problematic for her to do this.

By profession, Alexander is a builder-finisher and moonlights by performing repairs. According to Svetlana, he manages to find a well-paid job, but as soon as the question of employment arises, he receives refusals due to the lack of Russian citizenship.

“They don’t want to take it anywhere with the RVP,” explains Svetlana. - I do not work, because I cannot leave my son alone. In order for him to go to Anapa to submit documents, you need to interrupt the execution of orders here and not work for some time. The money will be needed for the road, for rented housing there, and also for renting an apartment here. It's all financially difficult for us, but we'll have to cope somehow."

RT within the framework of the project "We will continue to act" announced a fundraising to support the family.

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