Nikita Butenko from Rostov-on-Don was born with a severe heart defect - pulmonary atresia and significant damage to the interventricular septum. Rostov surgeons saved the boy's life - they performed two open-heart operations. Ahead of Nikita is the final and most difficult stage of surgical treatment - Fontaine's operation. For its successful implementation, a special breathing apparatus for high-frequency percussion ventilation of the lungs is required. There is no such apparatus in the Rostov cardio center. Its acquisition can save the life of not only Nikita, but also other children with severe diagnoses who will be treated here.
Three-year-old Nikita lives in the summer cottage village Zeleny Ostrov, near Rostov-on-Don. He has already undergone two major heart surgeries, but his life is still in danger: Nikita will have the third, the most serious open-heart surgery.
The baby was born on time, immediately screamed, but after a few hours he turned blue and began to choke. He was immediately taken to intensive care and oxygenated. A cardiologist from the Rostov cardiology center examined Nikita right there, in the hospital, and diagnosed a severe heart defect: underdevelopment of the pulmonary artery and massive damage to the interventricular septum. In fact, the newborn had a three-chambered heart.
“This is one of the most dangerous pathologies of the heart, in which there is no communication between the right ventricle and the pulmonary artery,” the doctor explained. And he warned the baby's mother, Elena, that not one, but several operations would be required: “First, we need to restore blood flow and ensure a full supply of oxygen to the heart. And then we will unload the only ventricle and restore the heart. But we still have to live to see that."
On the third day, Nikita was transferred to the Rostov cardio center and operated on: a vascular prosthesis was installed, which made it possible to restore blood flow bypassing the pulmonary artery.
For six days after the operation, the baby was in intensive care, on a ventilator. On the seventh I breathed myself.
For another month Nikita stayed with his mother in the hospital under the supervision of cardiologists. After the operation, he turned pink, but was still very weak, slept all the time and ate little.
The baby was discharged in a stable condition with a recommendation to undergo regular examinations and prepare for the next stage - Glenn's operation.
- For half a year we lived like on a powder keg, - says Elena. - For all babies, this is an active period when they begin to move - play, roll over, crawl. And Nikita, even from a little physical exertion, turned blue and began to choke.
Both day and night, mom and dad took turns carrying their son in their arms. He immediately calmed down and did not cry. Because Nikita couldn't cry either - he instantly turned blue. The parents were counting the days until the next surgery.
Operation Glenn Nikita was carried out in six months. After her, the baby smiled for the first time in his life. And in general, over time, he became more cheerful, began to rejoice at everything in the world.
But the danger has not yet passed. In the Rostov cardio center, where Nikita is to undergo surgery, there is no special breathing apparatus for percussion ventilation of the lungs (high-speed intermittent supply of the smallest volumes of air - percussion - through a special phasitron device - approx. "Lenta.ru"). And without this apparatus, the risk of an unfavorable outcome is too high.
- Officials did not allocate funds for the cardio center for the purchase of the apparatus, - says Elena. - And my husband and I are unable to buy it, it costs three and a half million rubles. After Nikita is operated on, the device will remain in the clinic. He will help save hundreds of more children's lives.
Now Nikita has gotten worse. Saturation (oxygen saturation of the blood) does not rise above 80 units. Little Nikita constantly lives in a state of oxygen starvation - like a man who climbed to the top of a mountain. The brain, heart, lungs - all organs work in an "economical" mode.
“Nikita often cries because she cannot breathe normally,” says Elena. - He has constant shortness of breath, walks like a robot - only straight and not tilting his head. Otherwise, fainting, loss of consciousness.
Anatoly Filonenko (Rostov-on-Don), Cardiac Surgeon of the Cardiac Surgery Center of the Regional Clinical Hospital: “Nikita needs to undergo the third, final surgery to correct the heart defect in the near future. The boy lacks one ventricle of the heart, because of this, the blood flow is passive. Conventional ventilators interfere with blood flow to the lungs in patients with a single ventricle. During and after surgery, Nikita will need protective ventilation of the lungs, which can be provided by the Phasitron VDR-4 device. The course of the postoperative period and the child's recovery will directly depend on the state of his lungs."
The cost of a high-frequency ventilator and consumables for it is 3,531,472 rubles.
At 17:00 (27.10.2020) 94 Lenta.ru readers collected 159,430 rubles. 357,904 rubles. collected by friends and colleagues of Nikita's parents 1 791 858 rubles were collected by the readers of rostov.rbc.ru, kommersant.ru, 1rnd.ru, the newspaper "Nashe Vremya", rbc.ru and rusfond.ru The missing is 1 222 280 rubles. Fundraising continues.
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