Unknown Hero. How A Bone Marrow Donor From Germany Saved The Life Of A Kaliningrad Schoolchild

Health 2023
Unknown Hero. How A Bone Marrow Donor From Germany Saved The Life Of A Kaliningrad Schoolchild
Unknown Hero. How A Bone Marrow Donor From Germany Saved The Life Of A Kaliningrad Schoolchild

Video: Unknown Hero. How A Bone Marrow Donor From Germany Saved The Life Of A Kaliningrad Schoolchild

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Video: Boy Meets Bone Marrow Donor from Germany 2023, January
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Daniil Safiulin is 16 years old. He is fond of playing the button accordion, studies in the 10th grade and, like many future graduates, is preparing to enter the university. At the age of 13 he was diagnosed with acute leukemia. According to Pope Daniel, Eugene, learning about the fatal illness of a child is the same as staying on an ice floe in Antarctica. On the eve of the International Day Against Childhood Cancer, we met with Daniel and Eugene to find out their history. COMMON SYMPTOMS As Daniel recalls, at first the symptoms of the disease were similar to those that occur with other pathologies: - At first I did not even understand anything. I just felt bad, there was weakness, headache. I felt like an old grandfather at the time. It was more difficult to wake up, the feeling was some kind of constant anxiety. Then Daniel's temperature began to rise. My legs began to hurt, and one day I had to call an ambulance: - In the morning I had to go to school, but my arm was swollen, the veins on it - I could not straighten my arm. The temperature rose, we called an ambulance, went with my dad to the hospital, and they took blood there and said that you had cancer. None of the parents are ready for this disease. Daniel's diagnosis came as a shock to the Safiulin family. - The child is quite healthy, grew up adequately, played, - recalls Eugene, Daniel's dad. - It’s easy for him to play four adults in two hours - grandfather, grandmother, we’re here once - it suddenly became bad. They immediately put me here, on Donskoy, in the children's polyclinic (note - Children's Regional Hospital). REWRITE THE CODE AND THE HERO FROM GERMANY The long and painful process of treatment began. Chemotherapy remains the main method of fighting the disease, but it only helps to destroy cancer cells: - Chemotherapy, of course, can find those cancer cells, destroy them, remove them from the body somehow, but still like a genetic code, like a computer program, for example - it will continue to continue in the same way, - says Eugene. To stop the disease, it was necessary, as the boy's dad explains, "to rewrite the code." The only way to do this is bone marrow transplantation: - When we had therapy, they got rid of all these cells, they sent us to St. Petersburg, to the Raisa Gorbacheva Research Institute of Pediatric Transplantology. There we were also immediately picked up by funds - "Vita", "Russian Fund", here "I Believe in Miracle" constantly worked with us. When a healthy child, and then the doctors come out, once - and his blood began to flow, this has never happened, and they say to you: "You have oncology." It's like staying on an ice floe in Antarctica. Daniel had to go through two bone marrow transplants - the first one was unsuccessful. The second donor was found in the international database: - We have no right to know who he is. We only know that the young guy is from Germany, - says Eugene. - I wrote the letter, we read it. This guy is a hero to us. Thanks to him, the child now lives a full life. After a bone marrow transplant, it takes a long time to recover. At first, Daniel had to follow a diet: - During bone marrow transplantation, the tissues of the internal organs of the digestive system die off, so solid food is by no means allowed, even up to artificial nutrition. In addition, along with the bone marrow, the recipient receives the DNA of his donor, including antibodies to diseases. Therefore, Daniel needs to create a new vaccination card and be vaccinated if his donor did not receive any vaccinations.HOW TO FIND STRENGTH IN YOURSELF In such a situation, it is important for both the child and the parents to know that you are not alone, and to feel support, to be able to switch to other activities. To spend time together even at a distance, dad and son began to play "tanks": - Distracted from thoughts when the child is in the hospital, - says Evgeny. - He had never even given injections before, he was not sick, everything was fine. And you know that he is in the hospital, you had to somehow get distracted. And that helped. Another hobby of the boy was pit bikes. This is a kind of mini-motorcycle, and, as Evgeny says, his son has an additional motivation to get well: - Parents, of course, I’m generally great, - says Daniel. - Thanks to them, the disease passed very easily and quickly. They always delighted me with gifts, board games, they found different hobbies. They bought me a laptop so that it was convenient to study. The study took place remotely. According to Daniel, projects such as “We Learn to Know” helped in mastering the school curriculum: - Thanks to them, I did not lag behind the school curriculum, and one might even say that I almost left my school, and after the illness, when I recovered, they still support, help in some issues. Classmates all this time kept in touch with Daniel. When he was recovering, he was finally able to meet with friends: - Friends often supported me, wrote. “When you recover, it's already boring without you already here in the classroom, come out.” I often had a shirt-guy in the classroom, as they say. This summer I met, I felt better, I could walk already. I met with my classmates, we walked with them. We recently built a sports complex nearby, a special courtyard was built there, a health complex, we spent the whole summer with them there. RETURN TO ORDINARY LIFE Now the young man is homeschooled, but already in the 11th grade it will be possible to go to school. Of course, the disease could not pass without a trace. First of all, she changed her attitude to life: - Now I feel great. We can already say that he has fully recovered. My mom says that I have matured very much, began to look at things with different eyes. Before the illness, he was always disobedient, spoiled. After the illness became more serious. Daniel can play with pets again and return to his usual activities. According to him, he used to be fond of music. He continues to play the button accordion now, but he wants to connect his life with medicine. Parents fully support their son. They even study biology with him: - I went to the button accordion - we have an art school nearby, I have always adored music since childhood. After the illness, I became more interested in sciences - chemistry, biology. I decided to go to the doctor. I am now preparing for the exam, for exams. We have few pediatric pediatricians in our region, therefore, having been in this area, I realized that this attracts me very much, this is my wave, one might say. Volunteers of the “I Believe in Miracle” charity center still help Daniel. The young man fondly remembers them and the AdVita charitable foundation, which helps people suffering from cancer: - I would also like to express my special gratitude to the volunteers. That with “I Believe in Miracle”, that with “AdVita” they helped me a lot to get away from my illness. There is simply no one to talk to, you cannot meet with friends - they helped, replaced friends. We still communicate with them, on birthdays "I Believe in Miracles" congratulates me. Very nice. WHAT WE CAN DO - On the eve of the Baltic Donor Day, we would like from our family to thank all donors, all donors who take part in this. Thanks to your sacrifice, your donations, children's hearts beat. Those people who donate blood, plasma - it helps everyone a lot. Thanks to this, children live. Thank you, - says Eugene. Anyone can become a hero for a child or an adult with leukemia. From 15 to 22 February, Kaliningrad will host the Baltic Donor Days.More information about the event can be found here, and how to become a donor - on the website of the Vasya Pervoshchikov National Registry of Bone Marrow Donors.

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