Two mothers, whose children have been diagnosed with a terrible diagnosis, help those who have just faced the disease
The Kursk region ranks 39th in the ranking of regions in terms of the prevalence of diabetes mellitus (DM). Almost 34 thousand people in our country suffer from this disease.
In March this year, the chief physician of the children's regional hospital, Igor Zorya, noted that now diabetes is comparable to an epidemic. According to Igor Vasilyevich, we are talking about three to seven newly identified cases among children every week. And 10 - 15 years ago, the diagnosis was made no more than 7 times a month. Not only doctors help children and adults learn to live with an incurable disease. In Kursk there is a public organization "Association for the Support of People with SD" Diabetes Life ". It was organized by two women whose children have diabetes. The activists won a grant this year. About what this money will be spent, the mothers told "KI".
Has become the norm
Until recently, children with type I diabetes were very rare. Now, almost every day, another child with a coma is admitted to the regional children's hospital.
- My daughter is ill. She was then only 1.5 years old. At some point, I began to notice that she began to drink a lot of water, began to run to the toilet often, and at the same time noticeably lost weight. And once she did not stand on her feet, although by that time she was already actively walking. Then we got scared and ran to the doctor. There they donated blood for tests, and when the results came, the daughter was immediately taken to intensive care, - Olesya recalls with pain.
For two days the girl was under the supervision of a doctor. Parents were not allowed to see her. It was this time that turned out to be the most terrible for Olesya. And then she was told that her daughter had diabetes.
- This diagnosis did not tell me anything at all. I heard that it is found in old people, but nothing more. Only when we were transferred to an ordinary hospital ward and I saw how insulin was injected into children, I began to understand what awaited us, - the woman admits.
According to Olesya, she spent the next year and a half in delirium. Blood sugar and insulin levels had to be monitored 24 hours a day, 7 days a week. Even at night, the mother was on duty at her daughter's bed. The family rearranged their diet, lifestyle and habits.
Due to illness, the child had little contact with peers. Parents hoped that from the age of 3, their daughter would be able to go to kindergarten for at least half a day. The girl was supposed to have breakfast and dinner at home.
- I was refused because of the diagnosis. The manager explained that one of the children can bring candy to the group, the teacher will not keep track, and my daughter will eat sweets. I reacted with understanding, - the chicken woman admits.
A woman cannot go to work. The family has a special daily routine. Olesya gets up at night and measures her sugar level.
- We excluded from the diet fried, semi-finished meat products, baked goods, flour products. It was not easy for the eldest daughter to get used to such a diet, - recalls Olesya.
The youngest daughter with SD Olesya sometimes allows a small piece of sweet and only after the main course. The woman believes that everything cannot be prohibited. Moreover, we are talking about a child. Kurianka wants her daughter not to feel that she is different from others. But soda and fries are not consumed in the family under any circumstances. Olesya says that it is harmful even for healthy people.
- It is important that the child constantly moves, sleeps well, does not get nervous, this also has to be monitored.
Meeting at the clinic
It is very difficult for parents whose child has diabetes mellitus. One of the main problems is the lack of information.
- I tried to adapt. I tried to learn as much as possible about the disease. There is a lot of information on the Internet about SD. Unfortunately, it is mostly of poor quality and lacks scientific basis.In this matter, the help of specialists is needed, - says Olesya.
The woman studied medical literature, went to Moscow specialists, and attended seminars on SD. Collected information bit by bit. Once, while standing in line at the clinic, a woman met Elena Kovaleva, who also came to see the doctor with her child with diabetes.
Mothers decided to unite people with the same problems and try to help them. In January 2018, they opened the public organization "Association for the Support of People with SD" Diabetes Life ".
- Everything was done on sheer enthusiasm. We really wanted to see a place where parents could share their experience, be closer to doctors and know how to get the necessary drugs for their child. To begin with, we register those who have encountered the disease for the first time, then we help parents, including providing psychological assistance. At the same time, we do not have membership fees, there are no levies, - notes Elena Kovaleva.
One of the directions of the association is the "School of Diabetes". The women rented a small room and began to invite leading endocrinologists of the Kursk region as speakers. At meetings with mothers, they talk about the difficulties of accepting the disease, the novelties of diabetes control, nutrition, modern insulin therapy. The convenience is that parents ask the doctors questions and get an immediate answer.
In addition to all this, Elena and Olesya told the parents of children with diabetes about charitable programs to help children with type I diabetes.
Recently, Elena attended seminars in Moscow, where she completed a full course on the use of an insulin pump. This medical device eliminates subcutaneous injections of insulin. In our region, no more than 20 children use such a device.
But many are afraid or simply do not know about this alternative to injections. Elena intends to tell about all the nuances of patients with diabetes.
Into the village, off the beaten track
Women note that giving lectures in Kursk is only part of their plan. Another area is helping patients with diabetes living in remote areas of the region.
The activists conducted research and found that 409 people with SD (4.6% of the total population of the district) were registered in the Khomutovsky district, 307 people with SD (3.6%) in the Konyshevsky district, and 827 people with SD in the Lgovsky district. (7%), in Korenevsky district - 360 people with SD (2.5%), in Manturovsky district - 330 people with SD (2.7%), in Kastoren district - 725 people. with SD (4.9%).
- This is where people need help, including advice. But it is more difficult for them to get to Kursk. It is in these areas that we will try to draw attention to the problem of late complications in people with diabetes mellitus and give lectures on the topic “Everyday life with diabetes. Prevention of Late Complications”. To do this, we applied for a presidential grant, says Elena Kovaleva.
A project called “Diabetes. Knowledge. Life”became the winner of the Presidential Grants Fund. In autumn, 435 thousand rubles will be allocated for its implementation, and taking into account co-financing, the total cost of the project will be almost 500 thousand. Olesya and Elena are going to go to remote areas of the region together with the best endocrinologists. And residents of distant farms will also be able to ask questions of concern to specialists.
In addition, in early July, the DiaSodruzhestvo-2019 interregional meeting for children with diabetes is scheduled by the Association for the Support of People with Diabetes Life Diabetes Life. For three days (from 5 to 8 July), 25 children with diabetes at the age of 10 to 14 years old from Kursk, Belgorod, Voronezh, Lipetsk and Orel will compete for the title of the winner of the competition at the Olimpiets sports and recreation complex.
The figure in the subject:
435,853 rubles will be received by activists for the implementation of their project.
You can visit the “School of Diabetes” classes at Kursk, p. Accumulator, 21v, office 10. You can find out about the time and date by calling: +7 (4712) 31-02-12.
Diabetes mellitus is a violation of the metabolism of carbohydrates and water in the body.As a result, sugar accumulates in our blood and is excreted in large quantities from the body through urine. There are two types of diabetes.
Type I is called insulin-dependent diabetes. Most often, this type of diabetes affects young people (including children), under the age of 40. People need insulin injections to live. The development of type I diabetes in children depends on a hereditary predisposition. It is necessary to monitor the water balance during acute respiratory viral infections and acute respiratory infections, a lack of water can provoke illness. Pay attention to the smell of urine. If you smell acetone, this is an excuse to check your blood sugar and insulin levels.
Type II is insulin-independent. Most often, type II diabetes affects the elderly, after 40 years, obese. The use of insulin for treatment is not necessary for every patient. To begin with, such patients are prescribed a diet. It is recommended to reduce weight slowly (2 - 3 kg per month). Insulin is prescribed only as a last resort. In order not to get sick with this type of diabetes, it is enough to move a lot, eat 4 - 5 times a day in small portions and reduce the consumption of sweets and baked goods.