Deputy Chairman of the State Duma Health Protection Committee Leonid Ogul called on the Russian Ministry of Health to develop instructions for district doctors so that they could fully inform the parents of children in need of rare medicines. RIA Novosti reports his words on Friday.
Earlier in social networks, information appeared that a woman was detained in Moscow, who ordered the drug Frisium, unregistered in Russia, abroad. The drug was required for her child, who has epilepsy. About a month ago, the mother of another child found herself in a similar situation.
Ogul noted that the Ministry of Health should develop instructions for district doctors so that parents receive detailed information from them about all possible options for solving the problem with a medicine, "so that parents clearly know how to act, where to call, where to go."
“It turns out that in our times of universal informatization, people do not know what to do in this or that case. And medicine is not the only area where this happens. In the 21st century with developed communications, such situations should not exist,”the deputy noted.
Ogul believes that in the incident it is unacceptable to call the mother of a disabled child a criminal. In his opinion, the main reason for this situation was the lack of awareness on the part of the authorities.
“People do not know the algorithm by which to act in such cases. The doctor said “find such a medicine” - but where and how? So they are looking for them on the Internet, they are being imported illegally. Of course, in this situation I am on the side of this woman. As on the side of those who have already faced a similar situation,”said the parliamentarian, explaining that“no mother who suffers from a child will think whether the medicine is registered or not.”
Ogul called on the Ministry of Health to conduct a thorough analysis of all prescriptions of unregistered drugs by doctors.
Earlier on Friday, it became known about the plans of "United Russia" to offer the Ministry of Health of the Russian Federation and representatives of charitable foundations in September to jointly develop systemic mechanisms to improve legislation in terms of drug provision.